Child development

How Early Intervention Works in Kentucky

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Kentucky's Part C program, First Steps, is run by the Cabinet for Health and Family Services through a network of regional Point of Entry offices rather than a school system. This page covers who qualifies, how the state's sliding-scale Family Share fee is actually calculated, and what happens once a child ages out at three.

Last updated: July 2026

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First Steps (KEIS): Kentucky's Early Intervention Program

First Steps is Kentucky's name for its Part C early-intervention system, formally called the Kentucky Early Intervention System (KEIS), serving children from birth to their third birthday who have a developmental delay or an established risk condition likely to cause one 1. The lead agency is the Cabinet for Health and Family Services, Department for Public Health — a health agency, the same structural choice some neighboring states make and a different one than states that route Part C through their education department.

Eligibility can rest on a measured delay found in an evaluation, or on an already-diagnosed condition such as Down syndrome or another condition with a well-established likelihood of causing a delay 2. Kentucky refers to this second path as an established risk condition, and a child can qualify through it even if no delay has appeared yet. Once eligible, the family and the local team write an Individualized Family Service Plan (IFSP), the working document naming services, frequency, and setting.

Point of Entry Offices: Where a Referral Goes in Kentucky

Referrals to First Steps go through regional Point of Entry (POE) offices, and Kentucky is explicit that anyone in a child's life can make that call — a parent, a grandparent, a childcare provider, a pediatrician, or any other adult with a genuine concern 3. No physician's referral or completed diagnosis is required first.

The POE is responsible for coordinating the evaluation once a referral arrives, and federal law requires the state to complete that evaluation and hold the first IFSP meeting within 45 days 2. A specially trained team works out of each POE, and a family's assigned service coordinator stays involved through the evaluation and every review that follows.

Because Kentucky organizes First Steps around districts tied to local health departments rather than a single statewide intake line, the correct POE to call is the one covering a family's home county — and any POE contacted by mistake can redirect the family rather than turning them away.

The Family Share: How Kentucky Calculates What a Family Owes

Most Kentucky families enrolled in First Steps pay nothing. The state assesses every family's ability to pay at enrollment, comparing family size and income against the Federal Poverty Guidelines, and a large share of families fall below the line where any Family Share fee applies.

For families with higher incomes, the Family Share is a capped monthly amount calculated once per family — not per child if more than one is enrolled, and not scaled to how many services or how often they happen. A family can ask Kentucky to recalculate the Family Share if their income drops or a hospitalization strains the budget. A family with private health insurance can also choose to waive the Family Share entirely by consenting to have that insurance billed instead. Evaluation, service coordination, and writing the IFSP itself are never billed to a family under any circumstance — the Family Share only ever applies to ongoing direct services once a child is already enrolled.

Evaluation, Eligibility, and Building the IFSP

A First Steps evaluation looks at every domain a delay could plausibly affect — communication, cognition, physical development, social-emotional growth, and self-help skills — not only the specific concern that prompted the referral 4. The evaluation team typically includes more than one specialty, matched to what the initial screening and the family's own concerns suggest.

If the child qualifies, the IFSP is built jointly with the family, favoring services delivered in the home or another setting familiar to the child over a clinic visit 1. The plan spells out concrete goals, not just a list of therapy types, and names exactly who is responsible for each one. The plan is reviewed at least every six months, and a family or the team can request it sooner if circumstances change.

A Diagnosis Is Not Required to Start

No. Eligibility for First Steps rests on a documented developmental delay or an established risk condition, not on a specific diagnostic label 3. Many Kentucky children begin services for a delay in talking, moving, or relating to others long before a family has any autism evaluation scheduled, let alone completed.

That is deliberate: autism evaluations frequently involve waits measured in months, and Part C exists precisely so a child does not have to sit through that wait before getting help. A Kentucky family does not need an autism diagnosis, or even a doctor's suspicion of one, before calling a Point of Entry office to request an evaluation. The two processes can run side by side without either one depending on the other, and a First Steps evaluation finding no delay does not rule out autism, any more than an autism diagnosis is required to find a delay.

Age Three in Kentucky: Leaving First Steps for an IEP

First Steps ends at a child's third birthday, and the local school district takes over under IDEA Part B, which guarantees a free appropriate public education from that point forward 5. How an IFSP becomes an IEP is the heart of this transition: it is a new eligibility determination, conducted by a new team that includes the school district, under Part B's own categories — autism is one of the specific categories IDEA names 6.

Kentucky's POE-based teams are expected to begin transition planning with families well before the third birthday, and a family can ask, ahead of time, which school-district staff will attend that first meeting and what happens to the Family Share once First Steps ends, since Part B services carry no comparable family fee. Records built up during First Steps — the original evaluation, every IFSP update — can be shared with the school district's team so a child is not re-tested entirely from scratch.

Common questions

No. A parent's or provider's concern is enough to start a referral to the local Point of Entry office. Eligibility is based on a documented developmental delay or an established risk condition, not a specific diagnostic label, and many children begin services well before any separate autism evaluation is even scheduled.

The Family Share is Kentucky's sliding-scale cost-participation fee, calculated once per family by comparing family size and income against the Federal Poverty Guidelines. Many families owe nothing. Families above the threshold pay a capped monthly amount, and can ask for it to be recalculated if income drops or a hospitalization changes their finances.

A parent or guardian can call the regional Point of Entry office directly, and so can a grandparent, a pediatrician, a childcare provider, or any other adult with a genuine concern. Kentucky does not require a doctor's referral or a completed diagnosis before a POE will accept a referral and begin the process.

Federal law requires Kentucky to complete the evaluation and hold the first IFSP meeting within 45 days of the referral reaching the Point of Entry office. A service coordinator is assigned early and stays involved to keep the process moving and to answer questions along the way.

First Steps ends at the third birthday, and the local school district takes over under IDEA Part B. The Individualized Family Service Plan is replaced by an Individualized Education Program, built by a new team, and eligibility is reassessed under Part B's own disability categories rather than carried over automatically.

Families with private health insurance can choose to waive the Family Share by consenting to have that insurance billed for services instead. A family that prefers not to use insurance can decline and pay the Family Share according to the sliding scale instead; either choice keeps the child enrolled in First Steps.

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When Not to Wait for the Standard Timeline

  • A child who previously used words, gestures, or social engagement stops doing so
  • A family is told a doctor's referral or a completed diagnosis is required before a Point of Entry office will schedule an evaluation
  • No evaluation is scheduled and no one from the local POE has made contact as the 45-day window closes

This article explains Kentucky's public early-intervention system for general education. It does not replace a developmental screening or evaluation by a qualified professional, and it is not legal advice about a family's specific eligibility.

References

  1. 1.U.S. Department of Education (2024). IDEA Early Intervention Program for Infants and Toddlers with Disabilities (Part C). U.S. Department of Education. linkDefines IDEA Part C, the birth-to-three population it covers, and its natural-environments framework.
  2. 2.U.S. Department of Education, Office of Special Education Programs (2024). Part 303 (Part C) — Early Intervention Program For Infants And Toddlers With Disabilities. IDEA — sites.ed.gov/idea. linkEstablishes the federal eligibility, evaluation, and 45-day IFSP timeline requirements under 34 CFR Part 303.
  3. 3.Centers for Disease Control and Prevention (2024). Accessing Services for Autism Spectrum Disorder. CDC — Autism Spectrum Disorder (ASD). linkSupports that families can access early intervention without a completed diagnosis and that anyone with a concern can initiate a referral.
  4. 4.Center for Parent Information and Resources (OSEP-funded) (2023). Part C of IDEA: Early Intervention for Babies and Toddlers. Center for Parent Information and Resources. linkDescribes the referral-to-evaluation-to-IFSP process families go through.
  5. 5.U.S. Department of Education, Office of Special Education Programs (2024). About IDEA. IDEA — sites.ed.gov/idea. linkEstablishes IDEA Part B's FAPE guarantee starting at age three.
  6. 6.U.S. Department of Education (2000). A Guide to the Individualized Education Program. U.S. Department of Education. linkExplains the IEP team process and that autism is a specified IDEA eligibility category.

6 sources, numbered by first appearance. General health information, not medical advice. AI-assisted editorial content — citations link their sources. Editorial policy